I have been in absolute awe as I take a look at the force of people now advocating for FASD. It's nothing short of incredible. So many faces and stories are now coming forward and there has begun a shift in the way the world is viewing this diagnosis. This has been my hope and prayer all along.
It is still important and now more than ever, that we not forget as adults FASD does not go away. There is such a gentle and echoing voice advocating for children, and we need that same voice advocating for adults. With every new chapter in your life as an individual with FASD, new obstacles and challenges will be faced. Every new chapter requires a different version of you. That very version will begin to adapt and learn to cope with new challenges that arise, however the battle remains.
I saw a quote today that said, "your child isn't giving you a hard time, they are having a hard time."
At 28 years of age, I am still a child, overwhelmed by their long day. I still require to be held tightly as I fall to pieces in the arms of a safe place. I still require a nap to shut off my brain so I can regroup. I still require you to understand that if I start getting loud I'm not yelling at you, I'm just yelling because I still haven't learned how to talk when I am upset. I still require you to be compassionate when I tell you I'm having an awful day with shaking and want to disappear into a cave where no one can see me. I still require you to repeat your directions to me more than once, because the first time it never registers and I wish this wasn't so, but it is. I still have nightmares so vivid and horrific I lay awake through the night too afraid to fall back asleep.
Adults just like children, need a fortitude of support systems in their life.